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Strength to Care

Lessons from Matthew & Isaac – Our CHARGE Syndrome Journey

Post op recovery…

It has been a long day…Matthew has proved that the only thing predictable about him is that he continues to be un-predictable and defies most “norms”

As of 10:30 pm he is resting comfortably (at least as much as possible). He continues to hold on to his squeaky toy dog and will not let go. They removed the ventilator tube about 7:30 after having turned it off an hour before. We are thrilled as they thought the “norm” would be to keep it in all night.

He is breathing quite well and his lungs are keeping clear. It will be a long night as the plan is that I will stay with him all night and Theresa will relieve me in the morning. We cannot Thank Aly for the miles she put on walking Sarah Anne this afternoon while Theresa and I were with Matthew when he woke up. We look forward to having Meggan (not our Megan) come and do the same tomorrow. Both of these gals were care-givers for Matthew over the years while they attended Grand Valley State University. Aly is now a nurse at U of M and Meggan will be graduating from U of M dental school in a few weeks. We are thankful for the friendships we have made and continue with them.

Speaking of friendships, we met an amazing family, of all places in a waiting room yesterday as we had pre-op appointments. The friendship has grown as they are on a similar path as ours as we have shared and prayed for each other as our paths have crossed over the past few days. Even thought it shouldn’t, I am amazed how God puts the right people in the right room at the right time to give strength and encouragement. To top it all…He even arranged that Matthew and Paislyn beds were right next to each other in the ICU. Please lift up Paislyn, also known as “Little Miss Miracle” as she recovers from this, her second heart surgery in her short life. I am looking and praying over Matthew and Paislyn as I type this.

We are not completely out of the woods yet, but are very encouraged so far. The exact words from the surgeon, and echoed by his cardiologist were “things went better than expected and hoped it would”. The repair was consice and the echo post-op showed just a small leak. Now we pray for no fevers, no infection and managed pain.

We are very thankful for the “sharing” of the blog that all of you have done…We are most assured that the good news we report is the direct result of your partnership…please take a moment to share with those you have already shared the result of thier faithfulness to pray.

God is good all the time, all the time God is good.


  1. Carol Johnston

    Kevin & Theresa…you are examples of what faith can do. God inevitably is the ONLY ONE doing what has been happening…but as a result of faith. Prayer changes things, strengthens our faith, and glorifies the ONE who made us all! Thank you for letting all of us share in this journey with you. It is an honor…to be used of Him. HE who is able to do exceedingly abundantly above all we may think or imagine!

  2. Judy

    I found your prayer request on my total money makeover site just this week and I knew right away God was touching my heart to partner in prayer for Matthew and your family…now I will add Paislyn to my prayers as well. What a wonderful Lord we serve who is able touch hearts in such a way as this! Your families faith shines brightly as you write about your journey:)
    So happy to hear both children are doing so well…

  3. Dana Hoebeke

    Kevin and family,
    Praise God for the successful surgery. All of Calvary church was praying this morning in all three services as Pastor Jim lifted Matthew up in prayer. Your journey has touched many. We’ll continue to pray that recovery will go better than expected!

  4. Jean

    I am Paislyn’s great aunt who lives in NC and found your blog through family. Your writing is such an encouragement. I am praying for Matthew. So glad God connected your families together. He is good like that. 🙂

  5. Carol Johnston

    Praise God for how well Matthew is doing! I will be praying that his lungs clear out, and he regains he strength when he gets home in his familiar surroundings. You guys are so faithful, loving and trusting…what examples you are for everyone to see! I’ll pray for your strength, good health, and joy. Let the joy of the Lord be your strength. It’s kids like Matthew, that Jesus holds close to his heart, and you have been blessed to have him in your family!

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