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Strength to Care

Lessons from Matthew & Isaac – Our CHARGE Syndrome Journey

Never once did we ever walk alone…

Many of you who have been keeping up with our prayer requests know that Isaac had to have a procedure this past week to have his esophagus reopened at the place where it had been fused just a few days after he was born. Scar tissue had completely closed off the opening in just a few weeks since the last look at it. We are now dealing with the complications that occurred while this procedure was being done. The short version is that he had his right lung collapse from a perforation in his esophagus and possibly his lung. The lung collapse and leaking fluid into his chest cavity keeps him in the Pediatric ICU as I write this. Our stay will be as long as it takes to heal his esophagus and to have the chest tube removed. Our biggest need for prayer is for no infection. We also pray for the increased temperature he has been running.

Crud, another hospital stay. Another week or more of living at the hospital. Another week of our family being separated. Another week of having to die to self-centeredness. Another week of seeing Isaac in pain. Another week of pain for us. As I was sitting in his dark room the other night I had allowed a hint of “this sucks” to enter my thoughts…until I was blessed with a new friend sending this to us. Last Saturday, after knowing that Isaac was facing having a nose tube placed for an indefinite amount of time, we quickly pulled together having some family pictures taken. Here is what I watched and cried along with after my brief moment of pity. Make sure you turn on your speakers…the lyrics make all the difference.

Photos and compilation: Andrea Perron Photography, LLC

Never once
Did we ever walk alone
Never once
Did You leave us on our own
You are faithful
God, You are faithful      Matt Redman – Never Once 10,000 Reasons

When did my little girls turn into such beautiful young women? When did Matthew grow up into a handsome boy? Wasn’t Sarah Anne just a baby? Where was our faith life before Isaac? Is it possible that my wife has become more beautiful in spirit and in appearance?

Scars and struggles on the way
But with joy our hearts can say
Never once
Did we ever walk alone

Carried by Your constant grace
Held within Your perfect peace
Never once
No we never walk alone      Matt Redman – Never Once 10,000 Reasons

How could I ever host a pity party? You are faithful, God You are faithful. All kinds of emotions came flooding back from the past several years of our marriage, our kids, our families. Never once did we ever walk alone.

It is amazing how a single song or a few encouraging words can make a difference. There have been many times we have individually wanted to throw in the towel only to have that towel become another moment of blessing.

I have been amazed with how many people have become a part of our journey in prayer and support. For those who have continued to pray, thank you. For those who have helped us financially at times, thank you. For those who have provided a meal or helped with child care, thank you. I have shared several times with people about the unique perspective we have of how God works in and through his people. We have heard many times over the years that our story inspires people. We are inspired by your testimony as God prompts you in prayer, you listen and then you respond to needs. Never once did we ever walk alone.

Please continue to pray for the Troupe’s. Isaac could use the most now as his fragile body heals and fights through this latest setback. It really is not a setback since they were able to find a path through. The alternative if this did not work was to do reconstructive surgery and actually move his stomach up into a place in his chest. Pray for the rest of us as we negotiate the rest of our family life over the next week or so while we are with Isaac in the hospital.

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