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Strength to Care

Lessons from Matthew & Isaac – Our CHARGE Syndrome Journey

Isaac update…”bubble wrap” needed

Your prayer response has been nothing more than humbling. Your notes of encouragement and scripture have been what has kept both of us going through this whirlwind of the past few days.

The most immediate need of prayer is for Isaac and the surgery he will be having tomorrow (Tuesday) to repair his EA and TEF issues. What those stand for are Esophageal Atresia and Tracheal/Esophageal Fistula. In the language you and I use the first one means that his food pipe goes down, stops and has created a pocket. This means secretions and food have no where to go. The windpipe goes to his lungs…but also continues on to his stomach where the esophagus was supposed to go. The surgery will be to make all of the right connections. Please know that I have completely oversimplified this explanation…prayer is needed not only for the surgery but also for the recovery. Isaac will not be able to even try to eat until a week or so has passed. Combine this feeding difficulty with his cleft palate and lip, and any cranial nerve swallow problems, Isaac will have quite a learning curve just to eat.

Many of you have asked how we are doing. I had a thought on the way to the hospital this morning after seeing and reading many of the messages you have all left. Your constant prayer has had an insulating effect on us much like being wrapped in bubble wrap. We can feel the bumps of what is going on around us but are protected from the fear, worry and anxiety. Those things have been filled in with hope, comfort and peace.

Tomorrow we will need another “packing” of bubble wrap for the surgery and recovery.

Many have asked if it is okay to share this blog about our Lessons from Matthew…not only is okay, but we emphatically ask that you would. We welcome any chance to show how good God is and how he is working through the power of prayer. Conveniently use the “Share” buttons at the bottom of this post. If you want to join in praying for our family and getting updates on our journey, join us by filling out your information at the top of the right-hand column.


  1. Lisa

    Count the Barry family in as bubble wrap! Lifting you all up every step of the way.

    Scott and Lisa

  2. Efitzgerald

    Continuing to pray for not only your family but the doctors who will be working on your precious little son.

  3. Kent Julian

    You guys are in my prayers, Kevin.

  4. Raapdenise

    you r and have been in my nightly prayers! If you need anything else plz let me know.

  5. Jim and Gini

    Just know that we are keeping you all in our prayers. Praying that God will keep his loving arms around you and give you peace.
    Jim & Gini

  6. Sondra

    Noah had the same surgeries,at one day of age,8 days later he faced another surgery to close an open PDA in his heart…several surgeries later on his 108th NICU day he was released to go home! For a” how’s he doing now “look …go to http://www.noah4.shutterfly.com

  7. Ktroupe

    We are praying for you and Isaac as he faces surgery tomorrow. May God bless all of you and as the Great Physician keep Isaac In His care. One hour at a time and keep looking up.

    Love to all,
    John and Barb VP

  8. Penny

    Blessings and prayers for Isaac and your whole family….Father, in Jesus name and His shed blood, we seek wholeness and healing for Isaac. We ask that you guide his surgeon and all in the operating room with peace and strong focus. For his mom and dad, Lord, peace and comfort and the sure knowing that You are there for each one of their family. Set Your angels around them to do battle for this amazing little guy. We do not and will not fail to give you all praise and glory. Bring amazing strength to his body and Your beautiful love to his spirit. Allow him to know Your presence and feel only Your loving arms. Thank you, Lord for hearing and answering our prayer. In Jesus Holy Name, Amen.

  9. melissaji

    Praying for you all. Some of my favorite song lyrics are:
    God is too wise to be mistaken
    God is too good to be unkind
    When you don’t understand
    When you can’t see His plan
    When you can’t trust His hand
    Trust His heart
    He alone is faithful and true
    He alone knows what is best for you
    So when your pathway grows dim
    And you just can’t see Him
    When you can see His plan
    Trust His heart

  10. Blessings514

    We haven’t met. . . heard about your blog from Tom & Nancy Klaassen who met you at the dance program Friday night & added you to our church prayer list. Praying you feel Gods peace during surgery today.

  11. Cal and Cathy TerAvest

    Please know that you are in our prayers! It’s amazing how God gives us the grace to face all that is difficult as you go through the process of healing and finding out test results. Congratulations on the birth of Isaac, he is a beautiful little boy.

  12. Lisa Weir

    sending a few layers of bubble wrap down from Eastern Canada to dear Isaac and to all of you…

  13. Mkotlarczyk

    Looking for the “like” button! lol So glad you are all feeling that Supernatural Peace that passes all understanding! I can’t imagine how people, who don’t have a Relationship with the creator, handle such trying times. BTW Isaac is beautiful! I actually understood the “not so simplified” version of his surgery.:) Keep pressing on and grace and peace be with you! Wendy

  14. Tom

    Praying now that God’s comfort and loving embrace caresses you all. We are praying for you and for God to continue to provide what you need. Strength, courage and peace to you!

  15. cwalton

    My prayers are with you and Baby Issac. I know exactly where you are because that is where we were almost 10 yrs ago. Our son Ethan had the exact same issues and surgeries at birth. He is now a thriving 9.5 year old. It is a very trying time but God will see you through. GOD BLESS!

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