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Strength to Care

Lessons from Matthew & Isaac – Our CHARGE Syndrome Journey

Lush grass or cold rocky crags?

Lush grass, fertile soil, butterflies, meadow flowers, frangrant pines, soft ferns, a beautiful babbling brooke…The valley has all the makings of a perfect postcard picture. So, why do so many of us long for the mountain top experience?

I finished a great book recently by Andy Andrews titled The Noticer: Sometimes, all a person needs is a little perspective. A casual story about a man who mysteriously shows up in people’s lives at an opportune time and helps them with “a little perspective” of the situations they find themselves in. It was the perfect read for the journey we are on right now and how the journey is about to become a much larger expedition for our family.

As many of you know from our recent posts, we are expecting a new addition to our family…a son who is set to arrive at the end of May. If you are new to Lessons from Matthew you can catch up on the previous posts Can Lightning Strike Twice? and Lightening Update. We haven’t posted in a few weeks while we have been gathering information on what kind of expedition we may be facing with our new son.

Without going into all of the details, there is substantial enough information in the different ultra-sounds and fetal heart-echo to determine that our new son may join Matthew in the CHARGE Syndrome corner. The puzzle pieces I mentioned in past posts are coming together to form a familiar pattern and picture. Nothing is certain for sure, but we are beginning to assemble the “team” that will be present at his birth. We covet your prayer as we assemble this team and as we build the needed appointments to fact-find in the next several weeks. As early as next week we will be getting another look at our boy’s heart at Mott’s Children’s Hospital at the University of Michigan. Who would have ever known other than our creator that we would be back at the Neo Natal Heart Center there again.

CHARGE Syndrome or not, our new baby boy will enter this world with challenges similar to what we experienced with Matthew. What we will not know until that day is the extent and severity of the information we know now and what we will not know when he is born.

The main question many of you are begging to ask at this time…How are we doing? I can personally say, it is the most helpless feeling in the world to hear your best friend (my wife Theresa) cry herself to sleep at night. I have my moments too…but, as a guy I will take my time to release when I can wear my sunglasses, even while driving on a cloudy day. I think Theresa and I are not asking God the “why” question, but more the “how” question. How are we going to take on this new challenge? We know strength will come…but, it can be hard when you are in the infancy of processing bad news.

I mentioned Andy’s book earlier…here are some of the words he wrote:

“Everybody wants to be on the mountaintop, but if you’ll remember, mountaintops are rocky and cold. There is not growth on the top of a mountain. Sure, the view is great, but what’s a view for? A view just gives us a glimpse of our next destination-our next target. But to hit that target, we must come off the mountain, go through the valley, and begin to climb the next slope. It is in the valley that we slog through the lush grass and rich soil, learning and becoming what enables us to summit life’s next peak.” Andy Andrews – The Noticer: Sometimes, All a Person Needs is a Little Perspective

Right now we are trying on new hiking shoes, testing and sizing up a new walking stick, selecting gear and outfitting our packs…we have the next summit in view and getting ready for the expedition of our lives!

Would you continue to pray for us? We would be grateful if you would pass along our need as well.

Many have asked if it is okay to share this blog about our Lessons from Matthew…not only is okay, but we emphatically ask that you would. We welcome any chance to show how good God is and how he is working through the power of prayer. Conveniently use the “Share” buttons at the bottom of this post. If you want to join in praying for our family and getting updates on our journey, join us by filling out your information at the top of the right-hand column.


  1. Marge Joned

    Prayed just now…continuing to pray for all of you..we love you guys….

  2. Tracy Roth

    Hi Kevin – I came across your blog on a random Google search – I too have a child with CHARGE Syndrome – my daughter Finley is two. I just wanted to let you know we will be thinking about you and your family and the upcoming birth of your new baby.

    Tracy Roth

    1. Kmtroupe

      Tracy, thank you for your thoughts. Love the name Finley. We pray that your CHARGE journey is going well. Do you have other children? You may private message Theresa and I if you like…

  3. Tom

    Father God, I lift Kevin and his family up to You now. Please answer our cries to You to show Yourself and Your hows in Your will. Please give Your strength and power when we are without it. We tremble yet stand in the faith that You have given us. Please grace my brother Kevin with guidance, endurance and supernatural presence to be show him the way. LORD bring your comfort, Your peace and Your courage. We seek Your light and Your provision. Amen

    I will keep praying for you along this journey.

    1. KevinTroupe

      Tom, thank you for the prayer and encouragement. Kevin

  4. Pamela Ryan

    Dearest Troupes…
    know all the best prayers and thoughts are coming your way from Boston….
    love to you all and know I am holding you all close….
    pam ryan

    1. KevinTroupe

      Pam, thanks for your thoughts and for your prayer. We know we have a global family who share this journey…thanks for being a part of the CHARGE community and helping to change so many lives.

  5. kawfolks

    Sending love strength and positive thoughts all the way from eastern Canada from the whole Weir family – will hold you in our thoughts.

    1. KevinTroupe

      Thank you, Lisa…we missed seeing everyone at the last conference! Looking forward to getting together again in the furture.

  6. Michele - Aubrie's mom

    Adding my prayers to the chorus of prayers going up world-wide. Blessings to all of you as you journey into the valley…

  7. Mccants_christian

    I pray for your child’s health and family happiness.. Tim & Christian McCants… My son lives in saginaw area with his mother…

  8. Meg Hefner

    Kevin and Theresa – I have not been on here of FB for a while, so only just saw the latest update. But please know I think of you often and wish you and your coming baby lots of strength.

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