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Strength to Care

Lessons from Matthew & Isaac – Our CHARGE Syndrome Journey

A shift in prayer…

Just a brief update on Matthew and his recovery at Home…Could someone please tell our son that he had major open heart surgery 6 days ago! We are having a hard time keeping this boy down!

He had a good night the first night home. Many of you saw the picture of him happy lying in front of his television with his beloved letters. I have attached a link to a video we took as well and have uploaded to YouTube. Feel free to look at some of Matthew’s other videos while there.

Matthew – Home from surgery on YouTube

Matthew cuddling with the stuffed gorilla

He woke up on Wednesday at 7:00 and began his day as normal. The only break he took was to spend some time in the wicker chair with the stuffed gorilla. We though he might take a nap…not to be. We thought he might go to bed early then…not to be. Matthew decided that he did not need to sleep at all last night. He continued to play, even having Theresa and I change posts on his watch at about 5:00 am. He finally gave in at 7:00 am, a full 24 hours later. He only slept for 3 hours and began his day again.

So, our obvious prayer is for him to get some rest…and for us to get some rest. We are very grateful for his progress…just a little nervous that he is doing so well. To add to the “nervous” part, while I was taking things to the car for Theresa to run an errand, Matthew dashed out the front door, ran (I said ran) around the side of the house to check out the progress of the things he had thrown out our bedroom window. Yes, at some point today he apparently developed a new skill…opening the locks on our sliding windows! Next on my checklist…new kind of lock mechanism for windows.

Someday we will return to the prayer request for God to intervene and allow us to build a suitable “safe” house for Matthew…one that is only one level, double hung windows, sensory room…and the list of ammenities grows. We can pray big can’t we?

I am beginning to see a pattern here…the theme seems to be the 7:00 o’clock hour. It is 7:00 pm and Matthew just fell asleep…pray that he sleeps until 7:00 am, he needs it and so do we.

When I pray, coincidences happen, and when I don’t pray, they don’t. –William Temple

A great quote I read recently…a great theme to blog about Stay tuned for the regular weekly blog this weekend.

Many have asked if it is okay to share this blog about our lessons from Matthew…not only is okay, but we emphatically ask that you would. We welcome any chance to show how good God is and how he is working through the power of prayer.

1 Comment

  1. Vicki

    I’m exhausted just reading your blog. Praying for a night of rest for all of you.

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